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Speaker Story 2018
Read the story of Richard who attended Clinical Innovation Partnerships 2018 as a guest speaker.
Hi, I’m Richard
Consumer Lead and Chair of Consumer Forum,National Cancer Research Institute (NCRI)
Step into the shoes of a patient: Why I chose to take part in a clinical trial and what could you do differently to improve my experience?
- How do I feel about the new data that can be collected from mobile apps and wearable technology?
- What ways can you improve the clinical trials experience for me?
- What are my priorities for taking part in a clinical trial – and how can understanding this help you to improve your patient recruitment?
- How can you ensure the patient experience is at the heart of the innovation you are implementing throughout your clinical trials?
Richard is a survivor of two cancers and a heart condition, and chairs the National Cancer Research Institute’s Consumer Forum, a group of 91 experienced and trained patients and carers sitting on the NCRI’s UKwide clinical research groups and work-streams. As a patient advocate, Richard helped start the AllTrials campaign and useMYdata movement, and is a founding Editor-in-Chief of BMC’s open access Journal of Research Involvement and Engagement, the world’s first academic journal on that theme.